Atrial Septal Defect

Come here to find information on ASD
(and CHD) and updates on Adelyn’s condition.

My Posts:

March of Dimes post, includes links to Congenital Heart Disease organizations.

Birth Defect Registry

Why Aren’t Birth Defects a National Priority? An article by Rachel Thomas

I shouldn’t have…

Good and Bad News from the Cardiologist

Countdown to Friday

 Other links and resources:

4 thoughts on “Atrial Septal Defect

  1. I’m glad to have found your site. I’m pregnant, and my baby has a VSD (Ventricular Septal Defect) and Aortic Stenosis (narrow aortic valve). That means that the baby will need heart surgery to close the hole shortly after birth. I’m very nervous about this, since I’ve lost two pregnancies due to pre-term labor in the past. I’m happy to see a child who is doing relatively well on the outside, and I hope all goes well for your daughter. Wish me luck!

    1. I’m so sorry! **Hugs** Good thing this was diagnosis early so they are ready. I have heard some sad stories about babies not being diagnosis until they have adverse reactions to the Congential Heart Defect. I realize we don’t really ‘know’ each other, but if you want someone to vent/talk/share with feel free to e-mail me at cheminclined@yahoo.com or you can contact me via twitter @ChemInclined. Also here, obviously. I’ll be checking your blog for updates and keeping you in my thoughts and prayers!

      Michele

      1. We’re grateful that we know now, since it helps us prepare for what’s ahead. Thanks for the support! Like I said, I’m happy to see that your daughter can do normal kid things. I may e-mail you at some point. Right now, we’re focusing on keeping me pregnant as long as possible, so the valve can hopefully grow some, and the hole can maybe get a little smaller. We’ll deal with the delivery and hospital stay as it comes.

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